Description: Codes created by TPP for use in GP clinical data. Redacted sensitive/potentially identifying codes are represented by negative values.This is a flat (unstructured) list which uses strings (character sequences) to represent categories or special values.Coding can be downloaded here as a tab-separated file.WARNING: your browser does NOT have JavaScript enabled.Not all features of this website will be available to you.If possible, please enable JavaScript and refresh the page.WARNING: the interactive features of this website use CSS3, which your browser does not support. To use the full features of this website, please update your browser.
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June 7, 2012: Saw oncologist today. I have 4 spots, lung, right pelvis, base of spinal column and chest wall. My dr. does not think this is correct as I have no symptoms, do not look sick and it has been 17 years since I first had cancer, he is even wondering if it was ovarian back then, but of course it has been so long ago they hospital is having problems locating my files. Dr. decided to do a biopsy on the pelvis mass to make sure first and he will do a CA-125 at my husbands insistence.
I am an Australian and live in Brisbane Queensland. For a year or more I had been feeeling very tired, working long hours, sometimes 85 hours per week in a girl's boarding school. The catalyst came when I took a girl to the emergency room at the local hospital and stayed there for hours. The next morning I could not find the girl's personal file which I took with me. My mind had gone blank. My boss wasn't happy and I was threatened with dismissal. I loved my job and for the life of me could not understand why this happened.So I went to my local GP who said that I was suffering from stress and wanted to put me on an antidepressants. I was tired but never really felt stressed out, so I went to another GP, a lady this time. She acknowledged that there was something very wrong and asked if I had any other symptoms. So I mentioned that I had problems with my bowel, like if I was shopping and felt pain, I had to always run for the nearest bathroom. She sent me to have a virtual colonoscopy, and when the results came back it said I was OK, on reading the results I felt there was something wrong as they mentioned a tubal ligation and I had never had one.
On the following day, I visited my doctor. She didn't exactly know what to say to me, but the look on her face told me she too was worried. She immediately referred me to an OBGYN doctor, who made an appointment for me the very next day. The OBGYN doctor listened carefully to me as he reviewed my file. Before finding out from him what I was so afraid to hear, I explained to the doctor all my fears. I told him that I loved my baby. I told him that I didn't want to lose my baby. I cried and cried. I needed him to understand that I was so very afraid of what I expected he was going to tell me. He touched my hand and said that he thought I had ovarian cancer.
My story starts on March, 1999 when I went into the hospital to have my gall bladder removed. I had been experiencing pain and the x-rays revealed stones in my gall bladder. An ultra sound also showed small spots on my liver, which they determined to be small blood vessels (hemangiomas). After the surgery, I took a long time to heal. Most people reported that they were back to work within 7-10 days, it took me a month to get back on my feet. All the time I was complaining about fatigue and upset stomach. I was told it was probably a result of my surgery. I wasn't feeling better. I was always tired, had constant heartburn and stomach cramps. It got so bad that I went back to the doctor several times in the months that followed and he recommended that I take something to bind me (I can't recall the name of it, an over-the-counter anti-diarrhea powder). I took it, but it made me constipated with bouts of diarrhea. I kept going back to the doctor with the same complaints, even asked him to check my liver again. I was told that it was probably stress related and to keep taking the powder. Everytime I ate, I got diarrhea almost immediately after. My stomach bloated. I thought that I had a urinary tract infection. All the classic symptons of ovca. I remember being so sick at work and depressed and fatigued around November, 1999. I was so stressed out at work. At the time I was a customer service manager. I never had time to go back to the doctor. I was expected to be on call 24 X 7. I kept saying, please God, give me something to keep me out for a few weeks so I can recharge. Well guys, be careful what you wish for. On Dec 8, 1999, I went to my ob/gyn, paid out of pocket since he wasn't covered by my HMO. I was diagnosed with stage 3C ovarian. Just think, all the times I prayed to hit the lottery, this prayer he heard. I went back to my primary care physician (I prefer to call him Dr Death) He told me I had suspicious spots on my liver (HELL-O !!!!) and that I had ovarian cancer. He forgot about the original liver spots first detected in March and never bothered to read my file before meeting with me. When I was looking for hope regarding treatment, he reminded me of Gilda, how she couldn't be helped. The only good thing Dr Death did for me was to refer me to a wonderful group of specialists at Lutheran General Hospital, Park Ridge, IL. I had my surgery, Dec 20th, followed by 10 rounds of taxol/carbo and a SLS. My pre-surgery CA125 was up around 400, dropped to 90 after the first round of chemo and then to 12 after my second round. It stayed in single digits (with one or two exceptions when it went up to 12) while I stayed on chemo. I has a SLS in July, 2000 and then 4 more rounds of taxol, intraperitoneally. The second look was negative. I have been in remission since October, 2000. My last CA125 went from 10 to 12. My new philosophy on life is that nothing waits. Im going to be married to a wonderful man this Oct 5th, in Las Vegas (we have been together since 1995). In Dec, 1999 I thought I was going to die..that there was no hope. I was consumed with this thought. Today, I'm planning a wedding and a life with a wonderful man. By the way, I lost that horrible job, one of the happiest days of my life. I am now working part-time and on disability (that's another story). But I no longer define myself by my career-that is a gift this cancer experience has given me. Before cancer, my life was work, work, work. Today I cherish the time spent with my kids, man, friends, family, or by myself. I even take time to read now, what a concept!! For those of you who are new, don't give up hope. Insist you have further tests when your body tells you something is wrong and remember to breathe. Let's beat this beast together.
I am 24, and was recently diagnosed with stage 1a Ovarian Cancer, I suppose I am very lucky for that much. I have always been heavy-set, seems to run in the family. Over the past couple of years I have put on quite a bit of weight in my stomach area. I have always been pear shaped, and I would have thought this to be odd except that everyone else in my family is apple shaped...just thought those good old family genes were begining to kick in I suppose. Always being ashamed of my weight, even among other heavy-set people, I tended to wear loose clothing and hide my weight as much as possible. I first noticed that I was putting on weight a couple of years ago, and also that my stomach was hard and uncomfortable to sleep on. I went to a gynecologist for my regular appointment and she asked me if anyone had ever talked to me about fibrosis. I told her that no one ever had, and she dropped the subject. I scheduled an appointment with my primary care physician to ask his opinion about what the gynecologist had said. He "informed" me that it was just muscle and that I should not worry about it. As I put on more and more weight over the next couple of years I continued to hide it, trusting my doctor's opinion that it was nothing to concern me. During the month of May 2002 I began to have quite a few persistent health problems (sinus infections, bronchitis, pnemonia) and they would not go away no matter what antibiotics they put me on. Worse yet the weight gain was increasing even though I was hardly eating anything from being sick for so long. I went in to see my doctor yet again, and this time my mother insisted on coming with me. He seemed confused about what could be causing my poor health, and while he was making notes my mother mentioned to him that I had been putting on quite a bit of weight in my abdomen. The doctor felt my stomach and scheduled an emergency ultrasound for an hour later. They found a huge tumor that they believed to be attached to an ovary, though it was so large that they could not locate my ovaries to be sure. I went into surgery 3 days later assured by the surgeon that it was most likely benign since cancer does not usually grow so rapidly. 4 days after the surgery, still recovering in the hospital, they got the test results back, and it was cancer. They had removed a tumor roughly the size of a beach ball weighing about 32lbs along with the ovary it was attached to and the fallopian tube. The tests indicate that the cancer did not spread, which I am grateful for. For some reason my body was able to keep the cancer at stage 1a, while making me balloon up to the point where I had stretchmarks that were begining to crack open. Because of the size and frailty of the tumor they were unable to remove it in one piece. They drained over 2 GALLONS!!! out of the tumor. Due to some spillage during the draining process they are going to have me undergo 3 treatments with carbo/taxol 3 weeks apart, just to give me a safety net in case the cancer got into the blood stream. I am hoping for the best, even if I no longer have my thigh length hair. I donated my hair to Locks of Love, an organization which makes hairpieces for children under the age of 18 who are undergoing medical treatments resulting in hair loss. Also I have been trying to locate fundraising info for Ovarian Cancer. Breast Cancer fundraisers are rampant but I have had difficulty finding any for OVCA that are anything other than "send us your money." If you know of any walks, or things that are sold to raise money for the cause I would love to get involved with a local chapter in Sacramento, CA or start one on my own if people have suggestions. Best wishes for you, your friends and family members, Barbara Woodruff athianaerinos@hotmail.com 2ff7e9595c
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